How Can You Help?

Our mission until a cure is found for Usher syndrome will be to raise awareness and funds to support ongoing research.  Anything helps, please use the links below to support this important cause.


Foundation Fighting Blindness

The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, age-related macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. A cure is in sight and you can help us reach it.

Usher Syndrome Coalition


The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.


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