"She is fearless and wild, stubborn yet silly, determined and smart, and we are in awe of her braveness. Dream big little girl! Usher Syndrome has no chance of standing in your way!"
A large hall with a number of canvas portraits taken by the Usher Syndrome Society
A picture of a captioned canvas portrait of Jake, Rebecca and Beth that was taken by the Usher syndrome society.
Rebecca, Reagan, and Rebecca Alexander pose for a picture. Rebecca has a serious look on her face and Reagan and Rebecca Alexander are smiling
Reagan sitting next to her new friend Kailee, they are both smiling wide and looking at the camera
Reagan and Rebecca standing in front of the Liberty Bell
Beth Holding Reagan and Rebecca while crouching on the Rocky steps with Philadelphia in the Background.
A photo of attendees sitting at rows of tables. There are two screens, one showing information about a new treatment and the other captioning the speaker.
Its so important for anyone with usher syndrome to register so that they are in contact with the researchers who are working to cure this awful disease. If you or someone you know has Usher syndrome please register at the usher syndrome registry.