Tag Archives: Gene Therapy
Developments in Gene Therapy
Today we learned about the first person in the US treated for a degenerative retinal disease using an FDA approved gene therapy. Jack, a thirteen year old boy who is in the video below has a retinal disease which is caused by a mutation of the gene RPE65. Jack’s condition was treated on Tuesday and […]
Now Approaching Boston
This past weekend I spent a good portion of the day at a visions seminar hosted by the Foundation Fighting Blindness. It was not until I received a text from Beth that I realized that exactly one year prior was when we found out that Rebecca would eventually go blind. Before that day I would not […]
Is a Cure to Blindness Really in Sight?
Of course I would love to say emphatically YES, but there are still challenges and obstacles in the way. With that said however we are closer than ever, the advances in finding a cure to inherited retinal diseases has grown exponentially in the past 5-10 years. We recently attended a presentation at the Carroll Center […]
Memories for Rebecca 