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Big Changes
It’s been far too long since I have written last, and there have been so many changes. Rebecca transferred from her AMAZING preschool, Clarke School for Deaf and Hard of Hearing, to our hometown public Kindergarten school, the MECC, just a few short weeks ago. Rebecca learned so much at Clarke, she gained confidence, she […]
Team Becca’s Favorite DJ
Forty years is a long time. For all forty years of my life, I have had one constant friend, who naturally after all of these years, I consider family. How many of you can say that you have had the same friend for every year of your life, from the day you were born? I […]
Notification Wearable With Google Home
Technology is not always designed with people with extra needs in mind but with small tweaks to existing devices, solution can be created that can make a huge impact in someones life.
Despite The Challenges
Despite all of the challenges…..the device failures, the vestibular loss and struggle to balance, the too-frequent falls with bloody noses and a scraped face, the night-blindness, the communication breakdowns, the constant struggle to learn more in as short amount of time as possible, and all of the appointments……… Rebecca is thriving. There may be falls, […]
A Difficult Day
We found out today that both of Rebecca’s cochlear implants need to be ex-planted and re-implanted. We are heartbroken. The feelings are bringing me back to a time not too long ago when Rebecca had not yet heard a single sound. She hadn’t heard a bird chirp, her sisters laugh, or her mom tell her […]
Can you fix my CI’s Mom?
Rebecca continues to show signs of internal device failure as shown in the video below. She is reporting that we sound quiet to her and she has been talking much louder lately as she is having a difficult time hearing herself. Its hard to know if this is the result of a faulty microphone in […]
“It’s too dark”
Time changes everything, sometimes more quickly than we’d like. When you know what’s coming, you should be prepared for it, right? The time table we were given just doesn’t make sense, it wasn’t accurate. In the beginning, when we were absorbing information as fast as we possibly could, we held onto every word that every […]
Because Of You
It’s nearing the end of our Early Intervention journey, and it’s all so bittersweet. As much as I won’t miss having to make sure my house is (somewhat) clean every day, having people in and out, rushing everywhere………. Once the dust settles, I am going to miss the relationships that Rebecca and myself have made […]
The Human Culture
We started this blog to bring awareness to Usher Syndrome, mostly in an effort to prepare the world for Rebecca, to tell as many people about her and her syndrome as possible to help provide her with a future of inclusion. We try to keep away from blogging about the negative side of raising a […]
Memories for Rebecca 