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What A Night! Thanks For Helping Us In Our Efforts To Find A Cure For Usher Syndrome!!!!

What an amazing time we had last night with more than 200 people!!!!  I can’t thank you all enough for coming out and supporting our cause, all while having such a great time!!!  I would like to thank the most incredible DJ, Ken Souza from KJ Tunes of Fairhaven, for rockin’ the house with his […]

Is a Cure to Blindness Really in Sight?

Of course I would love to say emphatically YES, but there are still challenges and obstacles in the way.  With that said however we are closer than ever, the advances in finding a cure to inherited retinal diseases has grown exponentially in the past 5-10 years. We recently attended a presentation at the Carroll Center […]

These Little Hands

Is ASL a Language? A regular question that comes up when raising a deaf child.  It comes up when talking with friends, with family, with other parents, when talking with doctors and specialists, and it comes up during her developmental assessments.  It’s a question I may have asked prior to having a deaf child, after […]

A Retrospective on Worry

The other day a Facebook memory showed up from when Rebecca was only a few months old.  Beth created the post and it was a picture of Rebecca with a caption saying that she could not wait until the day Rebecca could hear her tell her how much she loved her.   When I saw […]

Interview With Molly

Jake’s cousin Molly is a Junior at Fairhaven High School.  Molly is taking a Media Production Class, and for a Photojournalism project she decided to do an interview on us and Usher Syndrome.  Molly is nominated for two student New England Emmy Awards, and she wants to go on to major in Communications. Although we […]

Fundraiser Approaching!

Only a month and a half away and so much to do but we are in really good shape and really excited about a fun night out to help raise awareness about Usher Syndrome, and generate proceeds to help find a cure for blindness.  We have had tons of support from friends, family, and our community […]

The World is Not Ready For Her

This is a TED X talk by the CEO of the Perkins School For The Blind, Dave Power.  We have a teacher who comes out from the Perkins school once a month to work with Rebecca.  For folks who do not know, the Perkins School For The Blind is where one of the most well […]