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Team Becca’s Favorite DJ

Forty years is a long time. For all forty years of my life, I have had one constant friend, who naturally after all of these years, I consider family. How many of you can say that you have had the same friend for every year of your life, from the day you were born? I […]

Notification Wearable With Google Home

Technology is not always designed with people with extra needs in mind but with small tweaks to existing devices, solution can be created that can make a huge impact in someones life.

Despite The Challenges

Despite all of the challenges…..the device failures, the vestibular loss and struggle to balance, the too-frequent falls with bloody noses and a scraped face, the night-blindness, the communication breakdowns, the constant struggle to learn more in as short amount of time as possible, and all of the appointments……… Rebecca is thriving. There may be falls, […]

A Difficult Day

We found out today that both of Rebecca’s cochlear implants need to be ex-planted and re-implanted. We are heartbroken. The feelings are bringing me back to a time not too long ago when Rebecca had not yet heard a single sound. She hadn’t heard a bird chirp, her sisters laugh, or her mom tell her […]

Deaf During a Pandemic

We speak with our voices, but our faces tell the story

Can you fix my CI’s Mom?

Rebecca continues to show signs of internal device failure as shown in the video below. She is reporting that we sound quiet to her and she has been talking much louder lately as she is having a difficult time hearing herself. Its hard to know if this is the result of a faulty microphone in […]

“It’s too dark”

Time changes everything, sometimes more quickly than we’d like.  When you know what’s coming, you should be prepared for it, right?  The time table we were given just doesn’t make sense, it wasn’t accurate.  In the beginning, when we were absorbing information as fast as we possibly could, we held onto every word that every […]

Because Of You

It’s nearing the end of our Early Intervention journey, and it’s all so bittersweet.  As much as I won’t miss having to make sure my house is (somewhat) clean every day, having people in and out, rushing everywhere………. Once the dust settles, I am going to miss the relationships that Rebecca and myself have made […]

The Human Culture

We started this blog to bring awareness to Usher Syndrome, mostly in an effort to prepare the world for Rebecca, to tell as many people about her and her syndrome as possible to help provide her with a future of inclusion.  We try to keep away from blogging about the negative side of raising a […]

The future of Cochlear implants?

  I found this great article on Hack A Day about some research being done to enhance the quality of sound from Cochlear Implants with a method using light.  Current solutions relay on electrical stimulus and only a small number of electrodes can be used at one time.  This is because electrical signals are difficult […]