Sorry She’s Deaf…
Why I need to stop apologizing for my extra needs child.
Fighting Against the dark
Help us fight back against the darkness and find a cure for Usher Syndrome.
First Prototype Of Notification Wearable for Rebecca
Got this notification wearable a lot further than I expected. Still needs a ton of refinement before it will be usable but I would say this is about halfway to being a viable tool for Rebecca to wear. Next step with this is to reconfigure the hardware so that it can be embedded into a […]
Time to Get Going
Building a haptic watch for Rebecca while she is going through cochlear implant revision surgery to enhance our ability to communicate.
Another Electrode Failing
Rebecca had testing of her cochlear implants today and more failures were discovered.
Deaf During a Pandemic
We speak with our voices, but our faces tell the story
The true impact of testing loopholes in medical device approvals.
USH Connections 2019
Two years ago, we went to our first Annual Usher Syndrome Coalition Conference in Chicago. We were in such a different place than where we are today. While I loved the city of Chicago, I can remember being overwhelmed with worry and fear. Chicago was great, but the reason for our visit there, absolutely terrified […]
Animals Offer Us Many Benefits
Pets have many benefits, especially for individuals with special needs. For such individuals, pets provide much more than companionship.
The Human Culture
We started this blog to bring awareness to Usher Syndrome, mostly in an effort to prepare the world for Rebecca, to tell as many people about her and her syndrome as possible to help provide her with a future of inclusion. We try to keep away from blogging about the negative side of raising a […]