Author Archives: memoriesforbecca

Adapt the World Labs

Adapt the world labs is nearly official.  Our logo is complete and the paper work to finalize our foundation is in the hands of the state.  Adapt the World Labs (website coming soon) primary goal is to use technology to develop solutions for people with extra needs and make that technology available to the people […]

A Big Decision

Who would have thought at two years old an important decision about school would be so eminent? Tomorrow Beth and I will sit with all of Becca’s service coordinators, doctors, and representatives from the school and the state.  All told there will be around ten people descending on the Lacourse household to discuss Rebecca’s educational […]

Developments in Gene Therapy

Today we learned about the first person in the US treated for a degenerative retinal disease using an FDA approved gene therapy.  Jack, a thirteen year old boy who is in the video below has a retinal disease which is caused by a mutation of the gene RPE65.  Jack’s condition was treated on Tuesday and […]

Courage

I thought a lot about courage today and what it meant. The thought was prompted when I got a text from Beth about her day, it was like any normal text but this one caused me to stop and give her a call.  I knew her plan today, it was like most days, between the […]

Save The Date May 5th

we are preparing our next fundraiser on May 5th in middleboro to raise awareness and funds for  curing blindness and Usher Syndrome.  Learn more about our fundraiser here We would love to hear from you in the comments below if you are able to join us.  Official invtes will be sent out soon.

A busy few weeks!!

It’s been quite a while since our last blog post.  We have been so busy.  We took the girls to Disney in November just before Thanksgiving, made it through the holidays, and then it was off to Vegas!  It’s been a busy few months! Disney was quite a trip!  Aside from the typical challenges of […]

An Energizing Meeting

  On Tuesday the 31st I made a trip up to the Perkins school for the blind in Watertown to meet with a couple of the staff there and show them the BecDot, a braille educational toy I am developing to help provide access to blind and visually impaired people ( more on the device […]