Rebecca continues to show signs of internal device failure as shown in the video below. She is reporting that we sound quiet to her and she has been talking much louder lately as she is having a difficult time hearing herself. Its hard to know if this is the result of a faulty microphone in her external processor or a symptom of what is happening with her internal device, which is slowly degrading as described in more detail here. Progress interrupted
Usher Syndrome Registry
Its so important for anyone with usher syndrome to register so that they are in contact with the researchers who are working to cure this awful disease. If you or someone you know has Usher syndrome please register at the usher syndrome registry.
The Big DayDecember 15, 2016
The big day is here.
Love, dedication and empathy. The best qualities for parents. Your family is an inspiration!
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