Obviously I know that the day will come, the last day Rebecca sees my face, I just never would have thought the day would be coming so soon. How am I going to hold on to her? How am I going to be able to see her vision go? I can’t let go, I won’t be able to. I realize I have time between now and then, but it’s not enough. I was hoping that the last time Rebecca saw my face it would be weathered and wrinkled, and I’d have gray hair, and I’d be in a nursing home somewhere. This isn’t how it’s supposed to happen.
"She is fearless and wild, stubborn yet silly, determined and smart, and we are in awe of her braveness. Dream big little girl! Usher Syndrome has no chance of standing in your way!"
Memories for Rebecca 
Hugs! Here for you if you need anything. 😢
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The progress of Ushers is very individual and many adults maintain useable central vision into old age! My girls also have type 1 ushers and are now 15 and 17 and they are going ok! Focus on the here and now, no one knows what tomorrow will bring!
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