Obviously I know that the day will come, the last day Rebecca sees my face, I just never would have thought the day would be coming so soon. How am I going to hold on to her? How am I going to be able to see her vision go? I can’t let go, I won’t be able to. I realize I have time between now and then, but it’s not enough. I was hoping that the last time Rebecca saw my face it would be weathered and wrinkled, and I’d have gray hair, and I’d be in a nursing home somewhere. This isn’t how it’s supposed to happen.
Usher Syndrome Registry
Its so important for anyone with usher syndrome to register so that they are in contact with the researchers who are working to cure this awful disease. If you or someone you know has Usher syndrome please register at the usher syndrome registry.
The Big DayDecember 15th, 2016
The big day is here.