Tag Archives: chicago

Reading From the Same Book

Beth and I have been reading a book titled, “No Barriers” authored by Erik Weihenmayer.  Erik is an adventurer who is telling his story about kayaking the Grand Canyon and also discusses his adventures of hiking Mt. Everest.  He is also vice president of the board of the not for profit, No barriers USA, which began […]

USH Connections Conference

  This Thursday we head to the 9th Annual USH connections conference in Chicago.  It will be the largest Usher Syndrome related event we have been to.  Along with 200+ other people, both families and individuals affected in some way by Usher Syndrome.   We will be travelling with mixed emotions, on one hand we […]