Tag Archives: Cochlear Implants

Usher Syndrome Fundraiser

In honor of our daughter Rebecca and all others fighting this disease, we are holding a fundraiser to raise awareness and funds for Usher Syndrome, the leading cause of congenital Deaf/Blindness.  All money raised will be donated directly to the Foundation Fighting Blindness who are leading the efforts to find a cure for Usher sSyndrome.  There […]

Update (Beth)

Rebecca is doing quite well.  Unfortunately her Physical Therapist was in a car accident just after Thanksgiving, so Rebecca hasn’t had PT in quite a while.  We’ll be starting weekly PT up at Children’s Hospital next week until her regular PT from Early Intervention is back.  As I previously posted, Rebecca has CME (cystoid macular […]

Mixed Emotions (Beth)

Rebecca’s CI surgery is only a little more than a week away, it’s hard to believe.  For so long it seemed so far away, and yet here it is.  The surgery itself we are told will be approximately 6-1/2 to 7 hours, and they will need an additional hour to perform a ERG test on […]