Tag Archives: Cochlear Implants

Big Changes

It’s been far too long since I have written last, and there have been so many changes. Rebecca transferred from her AMAZING preschool, Clarke School for Deaf and Hard of Hearing, to our hometown public Kindergarten school, the MECC, just a few short weeks ago. Rebecca learned so much at Clarke, she gained confidence, she […]

Despite The Challenges

Despite all of the challenges…..the device failures, the vestibular loss and struggle to balance, the too-frequent falls with bloody noses and a scraped face, the night-blindness, the communication breakdowns, the constant struggle to learn more in as short amount of time as possible, and all of the appointments……… Rebecca is thriving. There may be falls, […]

Growing # of Failed Cochlear Implants

So we now know that Rebecca’s cochlear implants will be replaced and the date for her surgery is scheduled for June 4th. Both will be removed and replaced which will add to a growing list of failed implants. Leading up to the determination that Rebecca will be re-implanted we have been following the failure rate […]

Another Electrode Failing

Rebecca had testing of her cochlear implants today and more failures were discovered.

The future of Cochlear implants?

  I found this great article on Hack A Day about some research being done to enhance the quality of sound from Cochlear Implants with a method using light.  Current solutions relay on electrical stimulus and only a small number of electrodes can be used at one time.  This is because electrical signals are difficult […]

Update (Beth)

Rebecca is doing amazing.  She can sign over 40 words now, and she can say “Mama”, “Dada”, “no”, “hi”, “bye-bye” (which comes out more like “die-die”), “Papa”, and she is very close to saying “Grandma”.  Rebecca is walking all of the time now, and considering her lack of vestibular function, she is doing a great […]

Little Adaptations

When a child is born you worry about everything regardless if the child is born with a disability or not.  In the end we find out its really not that hard, there are certainly no shortage of products out there today that make out lives tremendously easier.  I mean take for instance the diaper genie, […]

These Little Hands

Is ASL a Language? A regular question that comes up when raising a deaf child.  It comes up when talking with friends, with family, with other parents, when talking with doctors and specialists, and it comes up during her developmental assessments.  It’s a question I may have asked prior to having a deaf child, after […]

Fundraiser Approaching!

Only a month and a half away and so much to do but we are in really good shape and really excited about a fun night out to help raise awareness about Usher Syndrome, and generate proceeds to help find a cure for blindness.  We have had tons of support from friends, family, and our community […]

Our Sweet Beccs (Beth)

Rebecca is getting used to her CI’s, as are we.  She leaves them alone most of the day, only pulling at them when she’s bored.  She blinks when a loud sound is made, and she even wiggles and dances when she hears music!  She is making a lot more sounds already, and she seems to […]