Update (Beth)

Rebecca is doing amazing.  She can sign over 40 words now, and she can say “Mama”, “Dada”, “no”, “hi”, “bye-bye” (which comes out more like “die-die”), “Papa”, and she is very close to saying “Grandma”.  Rebecca is walking all of the time now, and considering her lack of vestibular function, she is doing a great job at it!  She does fall quite a bit however, and when she falls, she falls hard.  She’s had a couple bloody noses, a few bloody lips, and many bumps and bruises.  It’s hard to watch her struggle, but she’s getting better every day.

Rebecca is a busy girl.  She has physical therapy once a week here at the house, and once a week up at Children’s Hospital.  She has Speech Therapy twice a week, and a Teacher of the Deaf twice a week.  She has music group once a week, Mommy & Me Tumble Time once a week, and I try to take her to Story Time at the Library weekly.  She has a Teacher of the Visually Impaired who comes out once a month, and her service coordinator from Early Intervention also comes out once a month.  She has mappings of her cochlear implants every three to four months, she sees a retinal specialist every few months, and a speech/language pathologist.  I am so thankful for all of the services she receives.  If not for all of these wonderful people, Rebecca may not be where she is today.

Rebecca seems to struggle a little bit with her vision when it’s dark, but other than that she seems to be seeing everything just fine.  We are giving her eye drops twice a day to hopefully reduce the Cystoid Macular Edema that she has in her eyes.  We go back for testing on November 1st to hopefully find out whether the drops are working or not, that is of course, if Rebecca will cooperate during testing.

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Rebecca LOVES shoes, her purse, and glasses.  She also loves to climb anything and everything!  She loves her big Sis, going for walks, and taking baths.

We are looking forward to the Vision Walk on October 28th to support the Foundation Fighting Blindness.  We are so grateful to everyone who has donated and also to everyone who will be walking with us.

We are planning to have another “Team Becca Fundraiser” in March.  We hope that it will be as successful as it was this past year, and we look forward to seeing everyone again!

3 comments

  1. I am a new follower to your blog. I am blind. I also live with mental health difficulties. I am so glad rebecca is doing well. It all sounds really positive. xxx

    Like

  2. Love you guys!!!!!

    Like

  3. Precious girl. Good for you, Mom, for accessing all of the services for her

    Like

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