Tag Archives: Foundation Fighting Blindness

2nd Annual Team Becca Fundraiser

Another great time was had at the 2nd Annual “Team Becca” Fundraiser!  The amount of raffle items and the quality of the raffle items was just unbelievable!!  So many amazing people and businesses donated some incredibly awesome raffle prizes, and we are so grateful!!  Ken from KJ Tunes did another great job of keeping the dance […]

Update (Beth)

Rebecca is doing amazing.  She can sign over 40 words now, and she can say “Mama”, “Dada”, “no”, “hi”, “bye-bye” (which comes out more like “die-die”), “Papa”, and she is very close to saying “Grandma”.  Rebecca is walking all of the time now, and considering her lack of vestibular function, she is doing a great […]

Awareness Will Be the Catalyst for a Cure

Rebecca is doing her part to help find a cure.  The Foundation Fighting Blindness reached out to us to ask if they could use her story and her pictures in their latest campaign to raise funds to help find a cure.  We were of course happy to help and love the way the email campaign […]

A New Perspective

I was driving home from the office the other day thinking of the day we found out that Rebecca would lose her vision and how hopeless we felt during those first few weeks.  We were hoping for a cure but mostly we were preparing for her to lose her vision.  When we started the blog […]

What A Night! Thanks For Helping Us In Our Efforts To Find A Cure For Usher Syndrome!!!!

What an amazing time we had last night with more than 200 people!!!!  I can’t thank you all enough for coming out and supporting our cause, all while having such a great time!!!  I would like to thank the most incredible DJ, Ken Souza from KJ Tunes of Fairhaven, for rockin’ the house with his […]