Tag Archives: Blindness

Tough words to hear, “Legally Blind”

So as it turns out, my assumptions at story-time were correct.   We went to Perkins School for the Blind last week for a visual assessment, and the results were not what we had hoped for.  We were told that Rebecca’s visual acuity is 20/190+ and that she is right on the fence of being legally […]

Update (Beth)

Rebecca is doing amazing.  She can sign over 40 words now, and she can say “Mama”, “Dada”, “no”, “hi”, “bye-bye” (which comes out more like “die-die”), “Papa”, and she is very close to saying “Grandma”.  Rebecca is walking all of the time now, and considering her lack of vestibular function, she is doing a great […]

Awareness Will Be the Catalyst for a Cure

Rebecca is doing her part to help find a cure.  The Foundation Fighting Blindness reached out to us to ask if they could use her story and her pictures in their latest campaign to raise funds to help find a cure.  We were of course happy to help and love the way the email campaign […]

Little Adaptations

When a child is born you worry about everything regardless if the child is born with a disability or not.  In the end we find out its really not that hard, there are certainly no shortage of products out there today that make out lives tremendously easier.  I mean take for instance the diaper genie, […]

A New Perspective

I was driving home from the office the other day thinking of the day we found out that Rebecca would lose her vision and how hopeless we felt during those first few weeks.  We were hoping for a cure but mostly we were preparing for her to lose her vision.  When we started the blog […]

What A Night! Thanks For Helping Us In Our Efforts To Find A Cure For Usher Syndrome!!!!

What an amazing time we had last night with more than 200 people!!!!  I can’t thank you all enough for coming out and supporting our cause, all while having such a great time!!!  I would like to thank the most incredible DJ, Ken Souza from KJ Tunes of Fairhaven, for rockin’ the house with his […]

Is a Cure to Blindness Really in Sight?

Of course I would love to say emphatically YES, but there are still challenges and obstacles in the way.  With that said however we are closer than ever, the advances in finding a cure to inherited retinal diseases has grown exponentially in the past 5-10 years. We recently attended a presentation at the Carroll Center […]