Tag Archives: Deaf

Because Of You

It’s nearing the end of our Early Intervention journey, and it’s all so bittersweet.  As much as I won’t miss having to make sure my house is (somewhat) clean every day, having people in and out, rushing everywhere………. Once the dust settles, I am going to miss the relationships that Rebecca and myself have made […]

The Human Culture

We started this blog to bring awareness to Usher Syndrome, mostly in an effort to prepare the world for Rebecca, to tell as many people about her and her syndrome as possible to help provide her with a future of inclusion.  We try to keep away from blogging about the negative side of raising a […]

The future of Cochlear implants?

  I found this great article on Hack A Day about some research being done to enhance the quality of sound from Cochlear Implants with a method using light.  Current solutions relay on electrical stimulus and only a small number of electrodes can be used at one time.  This is because electrical signals are difficult […]

Tough words to hear, “Legally Blind”

So as it turns out, my assumptions at story-time were correct.   We went to Perkins School for the Blind last week for a visual assessment, and the results were not what we had hoped for.  We were told that Rebecca’s visual acuity is 20/190+ and that she is right on the fence of being legally […]

Feeling Like We Don’t Belong

I took Rebecca to story time this morning as I usually do on Thursdays.  We walked in and sat on the floor with the rest of the moms/grandmothers and their toddlers.  A few minutes into story time Rebecca was curious and got up to go look at something at the back of the room.  A […]

Now Approaching Boston

This past weekend I spent a good portion of the day at a visions seminar hosted by the Foundation Fighting Blindness.  It was not until I received a text from Beth that I realized that exactly one year prior was when we found out that Rebecca would eventually go blind.  Before that day I would not […]

Update (Beth)

Rebecca is doing amazing.  She can sign over 40 words now, and she can say “Mama”, “Dada”, “no”, “hi”, “bye-bye” (which comes out more like “die-die”), “Papa”, and she is very close to saying “Grandma”.  Rebecca is walking all of the time now, and considering her lack of vestibular function, she is doing a great […]