Tag Archives: Deaf

Despite The Challenges

Despite all of the challenges…..the device failures, the vestibular loss and struggle to balance, the too-frequent falls with bloody noses and a scraped face, the night-blindness, the communication breakdowns, the constant struggle to learn more in as short amount of time as possible, and all of the appointments……… Rebecca is thriving. There may be falls, […]

First Prototype Of Notification Wearable for Rebecca

Got this notification wearable a lot further than I expected. Still needs a ton of refinement before it will be usable but I would say this is about halfway to being a viable tool for Rebecca to wear. Next step with this is to reconfigure the hardware so that it can be embedded into a […]

Time to Get Going

Building a haptic watch for Rebecca while she is going through cochlear implant revision surgery to enhance our ability to communicate.

A Difficult Day

We found out today that both of Rebecca’s cochlear implants need to be ex-planted and re-implanted. We are heartbroken. The feelings are bringing me back to a time not too long ago when Rebecca had not yet heard a single sound. She hadn’t heard a bird chirp, her sisters laugh, or her mom tell her […]

Another Electrode Failing

Rebecca had testing of her cochlear implants today and more failures were discovered.

Deaf During a Pandemic

We speak with our voices, but our faces tell the story

Because Of You

It’s nearing the end of our Early Intervention journey, and it’s all so bittersweet.  As much as I won’t miss having to make sure my house is (somewhat) clean every day, having people in and out, rushing everywhere………. Once the dust settles, I am going to miss the relationships that Rebecca and myself have made […]

The Human Culture

We started this blog to bring awareness to Usher Syndrome, mostly in an effort to prepare the world for Rebecca, to tell as many people about her and her syndrome as possible to help provide her with a future of inclusion.  We try to keep away from blogging about the negative side of raising a […]

The future of Cochlear implants?

  I found this great article on Hack A Day about some research being done to enhance the quality of sound from Cochlear Implants with a method using light.  Current solutions relay on electrical stimulus and only a small number of electrodes can be used at one time.  This is because electrical signals are difficult […]

Tough words to hear, “Legally Blind”

So as it turns out, my assumptions at story-time were correct.   We went to Perkins School for the Blind last week for a visual assessment, and the results were not what we had hoped for.  We were told that Rebecca’s visual acuity is 20/190+ and that she is right on the fence of being legally […]