Tag Archives: Deaf

Feeling Like We Don’t Belong

I took Rebecca to story time this morning as I usually do on Thursdays.  We walked in and sat on the floor with the rest of the moms/grandmothers and their toddlers.  A few minutes into story time Rebecca was curious and got up to go look at something at the back of the room.  A […]

Now Approaching Boston

This past weekend I spent a good portion of the day at a visions seminar hosted by the Foundation Fighting Blindness.  It was not until I received a text from Beth that I realized that exactly one year prior was when we found out that Rebecca would eventually go blind.  Before that day I would not […]

Update (Beth)

Rebecca is doing amazing.  She can sign over 40 words now, and she can say “Mama”, “Dada”, “no”, “hi”, “bye-bye” (which comes out more like “die-die”), “Papa”, and she is very close to saying “Grandma”.  Rebecca is walking all of the time now, and considering her lack of vestibular function, she is doing a great […]

All Things are Difficult Before They Become Easy

My experience as a parent of a disabled child.

Little Adaptations

When a child is born you worry about everything regardless if the child is born with a disability or not.  In the end we find out its really not that hard, there are certainly no shortage of products out there today that make out lives tremendously easier.  I mean take for instance the diaper genie, […]

A New Perspective

I was driving home from the office the other day thinking of the day we found out that Rebecca would lose her vision and how hopeless we felt during those first few weeks.  We were hoping for a cure but mostly we were preparing for her to lose her vision.  When we started the blog […]

These Little Hands

Is ASL a Language? A regular question that comes up when raising a deaf child.  It comes up when talking with friends, with family, with other parents, when talking with doctors and specialists, and it comes up during her developmental assessments.  It’s a question I may have asked prior to having a deaf child, after […]

A Retrospective on Worry

The other day a Facebook memory showed up from when Rebecca was only a few months old.  Beth created the post and it was a picture of Rebecca with a caption saying that she could not wait until the day Rebecca could hear her tell her how much she loved her.   When I saw […]

Interview With Molly

Jake’s cousin Molly is a Junior at Fairhaven High School.  Molly is taking a Media Production Class, and for a Photojournalism project she decided to do an interview on us and Usher Syndrome.  Molly is nominated for two student New England Emmy Awards, and she wants to go on to major in Communications. Although we […]

Fundraiser Approaching!

Only a month and a half away and so much to do but we are in really good shape and really excited about a fun night out to help raise awareness about Usher Syndrome, and generate proceeds to help find a cure for blindness.  We have had tons of support from friends, family, and our community […]