Is ASL a Language? A regular question that comes up when raising a deaf child.  It comes up when talking with friends, with family, with other parents, when talking with doctors and specialists, and it comes up during her developmental assessments.  It’s a question I may have asked prior to having a deaf child, after […]

The other day a Facebook memory showed up from when Rebecca was only a few months old.  Beth created the post and it was a picture of Rebecca with a caption saying that she could not wait until the day Rebecca could hear her tell her how much she loved her.   When I saw […]

Jake’s cousin Molly is a Junior at Fairhaven High School.  Molly is taking a Media Production Class, and for a Photojournalism project she decided to do an interview on us and Usher Syndrome.  Molly is nominated for two student New England Emmy Awards, and she wants to go on to major in Communications. Although we […]

Only a month and a half away and so much to do but we are in really good shape and really excited about a fun night out to help raise awareness about Usher Syndrome, and generate proceeds to help find a cure for blindness.  We have had tons of support from friends, family, and our community […]

This is a TED X talk by the CEO of the Perkins School For The Blind, Dave Power.  We have a teacher who comes out from the Perkins school once a month to work with Rebecca.  For folks who do not know, the Perkins School For The Blind is where one of the most well […]

On one of our visits to the ophthalmologist we were told that we should start familiarizing Becca with the Lea shapes (as to why, you can find more about Becca’s journey here).  Because of her retinitis pigementosa, which is a retinal disease associated with Usher Syndrome, she will need to start vision testing much earlier […]

Rebecca is getting used to her CI’s, as are we.  She leaves them alone most of the day, only pulling at them when she’s bored.  She blinks when a loud sound is made, and she even wiggles and dances when she hears music!  She is making a lot more sounds already, and she seems to […]