Tag Archives: blind

The World is Not Ready For Her

This is a TED X talk by the CEO of the Perkins School For The Blind, Dave Power.  We have a teacher who comes out from the Perkins school once a month to work with Rebecca.  For folks who do not know, the Perkins School For The Blind is where one of the most well […]

Interactive Visual Acuity Puzzle (Lea Shapes) using RPi3 and Arduino micro

On one of our visits to the ophthalmologist we were told that we should start familiarizing Becca with the Lea shapes (as to why, you can find more about Becca’s journey here).  Because of her retinitis pigementosa, which is a retinal disease associated with Usher Syndrome, she will need to start vision testing much earlier […]

Our Sweet Beccs (Beth)

Rebecca is getting used to her CI’s, as are we.  She leaves them alone most of the day, only pulling at them when she’s bored.  She blinks when a loud sound is made, and she even wiggles and dances when she hears music!  She is making a lot more sounds already, and she seems to […]

Usher Syndrome Fundraiser

In honor of our daughter Rebecca and all others fighting this disease, we are holding a fundraiser to raise awareness and funds for Usher Syndrome, the leading cause of congenital Deaf/Blindness.  All money raised will be donated directly to the Foundation Fighting Blindness who are leading the efforts to find a cure for Usher sSyndrome.  There […]

Cochlear Implant Activation Day!!

Today was the day we’ve been anxiously waiting for for almost a year, Rebecca’s Activation Day.   We went into the appointment very nervous, yet so excited! Reagan wanted her voice to be the first one Rebecca heard, and so it was. Rebecca was busy playing with toys when they turned her CI’s on, and […]

Update (Beth)

Rebecca is doing quite well.  Unfortunately her Physical Therapist was in a car accident just after Thanksgiving, so Rebecca hasn’t had PT in quite a while.  We’ll be starting weekly PT up at Children’s Hospital next week until her regular PT from Early Intervention is back.  As I previously posted, Rebecca has CME (cystoid macular […]

Bittersweet

On Wednesday December 21st our family was invited to an Usher Syndrome awareness event that was being sponsored by Arts for USH.  The significance of the date was that it coincided with the winter solstice and occurred on the darkest day of the year.  Not exactly sure how many people walked but I believe it […]

Rebeccas Cochlear Implant Surgery day

12-15-16 Today was the big day of Rebecca’s surgery, we walked into this day filled with anxiety and fear but left with relief and hope.   It was certainly a scary day for both of us and no matter how many people told us she was in good hands we did not find relief until […]

Adapting the World to Her -Jake

When Becca was born and we found out she was deaf I knew that the world was not going to adapt to her needs so I started thinking about ways that I could make the word a bit easier for her to navigate.  When we found out that she would also lose her vision the […]