Tag Archives: event

Reading From the Same Book

Beth and I have been reading a book titled, “No Barriers” authored by Erik Weihenmayer.  Erik is an adventurer who is telling his story about kayaking the Grand Canyon and also discusses his adventures of hiking Mt. Everest.  He is also vice president of the board of the not for profit, No barriers USA, which began […]

What A Night! Thanks For Helping Us In Our Efforts To Find A Cure For Usher Syndrome!!!!

What an amazing time we had last night with more than 200 people!!!!  I can’t thank you all enough for coming out and supporting our cause, all while having such a great time!!!  I would like to thank the most incredible DJ, Ken Souza from KJ Tunes of Fairhaven, for rockin’ the house with his […]

Fundraiser Approaching!

Only a month and a half away and so much to do but we are in really good shape and really excited about a fun night out to help raise awareness about Usher Syndrome, and generate proceeds to help find a cure for blindness.  We have had tons of support from friends, family, and our community […]

Bittersweet

On Wednesday December 21st our family was invited to an Usher Syndrome awareness event that was being sponsored by Arts for USH.  The significance of the date was that it coincided with the winter solstice and occurred on the darkest day of the year.  Not exactly sure how many people walked but I believe it […]