Tag Archives: memoriesforbecca

Tough words to hear, “Legally Blind”

So as it turns out, my assumptions at story-time were correct.   We went to Perkins School for the Blind last week for a visual assessment, and the results were not what we had hoped for.  We were told that Rebecca’s visual acuity is 20/190+ and that she is right on the fence of being legally […]

Now Approaching Boston

This past weekend I spent a good portion of the day at a visions seminar hosted by the Foundation Fighting Blindness.  It was not until I received a text from Beth that I realized that exactly one year prior was when we found out that Rebecca would eventually go blind.  Before that day I would not […]

Reading From the Same Book

Beth and I have been reading a book titled, “No Barriers” authored by Erik Weihenmayer.  Erik is an adventurer who is telling his story about kayaking the Grand Canyon and also discusses his adventures of hiking Mt. Everest.  He is also vice president of the board of the not for profit, No barriers USA, which began […]

USH Connections Conference

  This Thursday we head to the 9th Annual USH connections conference in Chicago.  It will be the largest Usher Syndrome related event we have been to.  Along with 200+ other people, both families and individuals affected in some way by Usher Syndrome.   We will be travelling with mixed emotions, on one hand we […]

Awareness Will Be the Catalyst for a Cure

Rebecca is doing her part to help find a cure.  The Foundation Fighting Blindness reached out to us to ask if they could use her story and her pictures in their latest campaign to raise funds to help find a cure.  We were of course happy to help and love the way the email campaign […]

A New Perspective

I was driving home from the office the other day thinking of the day we found out that Rebecca would lose her vision and how hopeless we felt during those first few weeks.  We were hoping for a cure but mostly we were preparing for her to lose her vision.  When we started the blog […]

Huge Surprise, Thanks Philips!!

Huge shout out to the folks over at Philips Hue!! They saw our blog post about our lea puzzle solution using their smart lights and decided to send us their latest model with richer colors.  Looking forward to integrating these new lights into Rebecca’s Lea puzzle solution! Not only does this help our Rebecca but I […]