Tag Archives: Retinitis Pigmentosa

Interview With Molly

Jake’s cousin Molly is a Junior at Fairhaven High School.  Molly is taking a Media Production Class, and for a Photojournalism project she decided to do an interview on us and Usher Syndrome.  Molly is nominated for two student New England Emmy Awards, and she wants to go on to major in Communications. Although we […]

Fundraiser Approaching!

Only a month and a half away and so much to do but we are in really good shape and really excited about a fun night out to help raise awareness about Usher Syndrome, and generate proceeds to help find a cure for blindness.  We have had tons of support from friends, family, and our community […]

The World is Not Ready For Her

This is a TED X talk by the CEO of the Perkins School For The Blind, Dave Power.  We have a teacher who comes out from the Perkins school once a month to work with Rebecca.  For folks who do not know, the Perkins School For The Blind is where one of the most well […]

Interactive Visual Acuity Puzzle (Lea Shapes) using RPi3 and Arduino micro

On one of our visits to the ophthalmologist we were told that we should start familiarizing Becca with the Lea shapes (as to why, you can find more about Becca’s journey here).  Because of her retinitis pigementosa, which is a retinal disease associated with Usher Syndrome, she will need to start vision testing much earlier […]

Rebeccas Cochlear Implant Surgery day

12-15-16 Today was the big day of Rebecca’s surgery, we walked into this day filled with anxiety and fear but left with relief and hope.   It was certainly a scary day for both of us and no matter how many people told us she was in good hands we did not find relief until […]