Tag Archives: #UsherSyndrome
Why I need to stop apologizing for my extra needs child.
Two years ago, we went to our first Annual Usher Syndrome Coalition Conference in Chicago. We were in such a different place than where we are today. While I loved the city of Chicago, I can remember being overwhelmed with worry and fear. Chicago was great, but the reason for our visit there, absolutely terrified […]
Time changes everything, sometimes more quickly than we’d like. When you know what’s coming, you should be prepared for it, right? The time table we were given just doesn’t make sense, it wasn’t accurate. In the beginning, when we were absorbing information as fast as we possibly could, we held onto every word that every […]
We started this blog to bring awareness to Usher Syndrome, mostly in an effort to prepare the world for Rebecca, to tell as many people about her and her syndrome as possible to help provide her with a future of inclusion. We try to keep away from blogging about the negative side of raising a […]
I recently attended a conference in San Jose to speak about what we are doing with Adapt the World Labs. The conference was the Sensors Expo and more than 7000 engineers attended the show, it was a great opportunity to speak about our mission about using technology to adapt the world. It was also […]
Another great time was had at the 2nd Annual “Team Becca” Fundraiser! The amount of raffle items and the quality of the raffle items was just unbelievable!! So many amazing people and businesses donated some incredibly awesome raffle prizes, and we are so grateful!! Ken from KJ Tunes did another great job of keeping the dance […]
Who would have thought at two years old an important decision about school would be so eminent? Tomorrow Beth and I will sit with all of Becca’s service coordinators, doctors, and representatives from the school and the state. All told there will be around ten people descending on the Lacourse household to discuss Rebecca’s educational […]
we are preparing our next fundraiser on May 5th in middleboro to raise awareness and funds for curing blindness and Usher Syndrome. Learn more about our fundraiser here We would love to hear from you in the comments below if you are able to join us. Official invtes will be sent out soon.
It’s been quite a while since our last blog post. We have been so busy. We took the girls to Disney in November just before Thanksgiving, made it through the holidays, and then it was off to Vegas! It’s been a busy few months! Disney was quite a trip! Aside from the typical challenges of […]