Tag Archives: #USHFamily

A Big Decision

Who would have thought at two years old an important decision about school would be so eminent? Tomorrow Beth and I will sit with all of Becca’s service coordinators, doctors, and representatives from the school and the state.  All told there will be around ten people descending on the Lacourse household to discuss Rebecca’s educational […]

Save The Date May 5th

we are preparing our next fundraiser on May 5th in middleboro to raise awareness and funds for  curing blindness and Usher Syndrome.  Learn more about our fundraiser here We would love to hear from you in the comments below if you are able to join us.  Official invtes will be sent out soon.

A busy few weeks!!

It’s been quite a while since our last blog post.  We have been so busy.  We took the girls to Disney in November just before Thanksgiving, made it through the holidays, and then it was off to Vegas!  It’s been a busy few months! Disney was quite a trip!  Aside from the typical challenges of […]

Now Approaching Boston

This past weekend I spent a good portion of the day at a visions seminar hosted by the Foundation Fighting Blindness.  It was not until I received a text from Beth that I realized that exactly one year prior was when we found out that Rebecca would eventually go blind.  Before that day I would not […]

Reading From the Same Book

Beth and I have been reading a book titled, “No Barriers” authored by Erik Weihenmayer.  Erik is an adventurer who is telling his story about kayaking the Grand Canyon and also discusses his adventures of hiking Mt. Everest.  He is also vice president of the board of the not for profit, No barriers USA, which began […]

USH Connections Conference

  This Thursday we head to the 9th Annual USH connections conference in Chicago.  It will be the largest Usher Syndrome related event we have been to.  Along with 200+ other people, both families and individuals affected in some way by Usher Syndrome.   We will be travelling with mixed emotions, on one hand we […]

Awareness Will Be the Catalyst for a Cure

Rebecca is doing her part to help find a cure.  The Foundation Fighting Blindness reached out to us to ask if they could use her story and her pictures in their latest campaign to raise funds to help find a cure.  We were of course happy to help and love the way the email campaign […]