Tag Archives: usher syndrome
Because Of You
It’s nearing the end of our Early Intervention journey, and it’s all so bittersweet. As much as I won’t miss having to make sure my house is (somewhat) clean every day, having people in and out, rushing everywhere………. Once the dust settles, I am going to miss the relationships that Rebecca and myself have made […]
The future of Cochlear implants?
I found this great article on Hack A Day about some research being done to enhance the quality of sound from Cochlear Implants with a method using light. Current solutions relay on electrical stimulus and only a small number of electrodes can be used at one time. This is because electrical signals are difficult […]
2nd Annual Team Becca Fundraiser
Another great time was had at the 2nd Annual “Team Becca” Fundraiser! The amount of raffle items and the quality of the raffle items was just unbelievable!! So many amazing people and businesses donated some incredibly awesome raffle prizes, and we are so grateful!! Ken from KJ Tunes did another great job of keeping the dance […]
An Energizing Meeting
On Tuesday the 31st I made a trip up to the Perkins school for the blind in Watertown to meet with a couple of the staff there and show them the BecDot, a braille educational toy I am developing to help provide access to blind and visually impaired people ( more on the device […]
Tough words to hear, “Legally Blind”
So as it turns out, my assumptions at story-time were correct. We went to Perkins School for the Blind last week for a visual assessment, and the results were not what we had hoped for. We were told that Rebecca’s visual acuity is 20/190+ and that she is right on the fence of being legally […]
The BecDot
This a project I am working on called the BecDot which is a literacy teaching tool I invented for our daughter Rebecca that could be used to teach visually impaired children Braille concepts.. This video talks a bit about our mission. Learn more about Usher syndrome and get involved We are telling the world about […]
Feeling Like We Don’t Belong
I took Rebecca to story time this morning as I usually do on Thursdays. We walked in and sat on the floor with the rest of the moms/grandmothers and their toddlers. A few minutes into story time Rebecca was curious and got up to go look at something at the back of the room. A […]
Now Approaching Boston
This past weekend I spent a good portion of the day at a visions seminar hosted by the Foundation Fighting Blindness. It was not until I received a text from Beth that I realized that exactly one year prior was when we found out that Rebecca would eventually go blind. Before that day I would not […]
Update (Beth)
Rebecca is doing amazing. She can sign over 40 words now, and she can say “Mama”, “Dada”, “no”, “hi”, “bye-bye” (which comes out more like “die-die”), “Papa”, and she is very close to saying “Grandma”. Rebecca is walking all of the time now, and considering her lack of vestibular function, she is doing a great […]
Reading From the Same Book
Beth and I have been reading a book titled, “No Barriers” authored by Erik Weihenmayer. Erik is an adventurer who is telling his story about kayaking the Grand Canyon and also discusses his adventures of hiking Mt. Everest. He is also vice president of the board of the not for profit, No barriers USA, which began […]
Memories for Rebecca 