Tag Archives: usher syndrome

The future of Cochlear implants?

  I found this great article on Hack A Day about some research being done to enhance the quality of sound from Cochlear Implants with a method using light.  Current solutions relay on electrical stimulus and only a small number of electrodes can be used at one time.  This is because electrical signals are difficult […]

2nd Annual Team Becca Fundraiser

Another great time was had at the 2nd Annual “Team Becca” Fundraiser!  The amount of raffle items and the quality of the raffle items was just unbelievable!!  So many amazing people and businesses donated some incredibly awesome raffle prizes, and we are so grateful!!  Ken from KJ Tunes did another great job of keeping the dance […]

An Energizing Meeting

  On Tuesday the 31st I made a trip up to the Perkins school for the blind in Watertown to meet with a couple of the staff there and show them the BecDot, a braille educational toy I am developing to help provide access to blind and visually impaired people ( more on the device […]

Tough words to hear, “Legally Blind”

So as it turns out, my assumptions at story-time were correct.   We went to Perkins School for the Blind last week for a visual assessment, and the results were not what we had hoped for.  We were told that Rebecca’s visual acuity is 20/190+ and that she is right on the fence of being legally […]

The BecDot

This a project I am working on called the BecDot which is a literacy teaching tool I invented for our daughter Rebecca that could be used to teach visually impaired children Braille concepts..  This video talks a bit about our mission. Learn more about Usher syndrome and get involved We are telling the world about […]

Feeling Like We Don’t Belong

I took Rebecca to story time this morning as I usually do on Thursdays.  We walked in and sat on the floor with the rest of the moms/grandmothers and their toddlers.  A few minutes into story time Rebecca was curious and got up to go look at something at the back of the room.  A […]

Now Approaching Boston

This past weekend I spent a good portion of the day at a visions seminar hosted by the Foundation Fighting Blindness.  It was not until I received a text from Beth that I realized that exactly one year prior was when we found out that Rebecca would eventually go blind.  Before that day I would not […]